DON'T TOUCH ME! When you're on the autism spectrum, that phrase can become a mantra that continually runs through your mind. 

On the other hand, you may experience the opposite in which you   want to touch everything, including  other people to the point of upsetting them by routinely violating their personal space. 



Standing in line

I was reminded of my own touch sensitivity while waiting in line to buy tickets at the Shedd Aquarium yesterday. I was already pretty dysregulated from the drive in, I'd never been there before so I was also anxious about the uncertainty I'd encounter. 

However, I'd decided it was going to be a grand adventure because my boys and I would be experiencing all of it together for the first time.

My youngest Connor is a proprioception junkie (loves deep pressure). Standing in line or sitting still for that matter drives him nuts. My wife Cathy is very good at spotting when Connor needs to move.

While I was focused on keeping it together in line (while other people kept brushing against me like I wasn't there) Cathy took Connor out of the line and over to the nearest wall. I heard her ask him, "Do you think you can move this wall?" Next thing I know Connor had both hands pressed against the wall and he was pushing as hard as he could. This is a little game that allows him to get a lot of pressure in his joints. It calms him quickly and makes the experience of waiting far more manageable.  

By the time we were through the line my whole body was weak and I needed to sit down. I was so dysregulated I needed a few minutes to sit, close my eyes and breath so I could get in touch with my body again. Once I felt more grounded we were off to begin our journey. 


Hug me
 

Even though I'm sensitive to repeated light touches, the right kind of deep pressure tends to regulate me and others on the spectrum quickly. This is where having a child who loves deep pressure is an amazing gift. Connor loves giving a lot of tight hugs, especially when he's excited. The pressure helps him regulate his nervous system including his mood.

Excitement can become overwhelming when you're unable to calm down so the deep pressure of hugging helps him with this as well. 

So between Connor hugs and the hugs of a darling wife who is in tune with my sensory needs I was able to make it through the day and experience this wonderful adventure with my children.


Just keep swimming

You don't need to be on the autism spectrum to become overloaded, of course. Each of us has our threshold of too much input.

The key is identify in any environment, which sensory input excites you and which input calms you. The better the balance the more able you are to manage that space.

While there was plenty of touching and noise at the Shedd Aquarium to throw anyone into meltdown, there were also endless opportunities to get lost in the wonder of watching the variety of ocean creatures simply swim. 

Watching the manta rays swim was like watching a creature from another planet explore the Earth. Looking at the Octopus smooshed into a crevice was enviable under the circumstances.

Watching their rhythmic movement, breathing and just being at times gave me the opportunity to tune in to them and tune out from the overwhelm around me. Balance is amazing when you can find it.

How do you find balance in situations like this? Please share. 


Photo Credit Sarajea via Flikr 

Views: 148

Tags: autism, confidence, coping, relationships, resilience, touch

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Comment by Brian R. King LCSW on February 13, 2012 at 12:43pm

Kay I'd need to know more about those situations where you are being ambushed by huggers.

Jane, I describe the light touches as an extreme tickle. Such as when someone might tickle you to the point you cannot breathe. Too many light touches in succession can create the same feeling. 

Comment by Jane Houghtaling Walker on February 13, 2012 at 12:32pm
I agree with all of these statements. What struck me is that firm pressure, not a light touch, is exactly the advice I also received on touching horses. The way it was explained to me, light touches feel like flies landing on the horse. Firm touches, on the other hand, feel reassuring. I wonder if explaining to other people that light brushes feel like flies landing would help others, who don't have this experience understand better.
Comment by Kay B. Meyer on February 13, 2012 at 12:14pm

THANK YOU Brian!   I will link today's blog to my FB pages (Business as well as personal) as soon as a figure out how.

PLEASE help me deal with the new world of business networking.  I don't hug strangers!  What gives them the go ahead to say "I am a hugger--so here I am."??

When I use my current strategies, a two handed handshake, a side step, a left hand touch to their sholder while we shake, some folks are still offended and taken aback.

Comment by Brian R. King LCSW on February 13, 2012 at 11:43am

You're welcome Angela. I explain in my book http://amzn.to/xvrdjA how to explore with your child what kind of hugs work best and when. Connor has several types of hugs for different situations. Hugs are never something you give without asking for permission first. 

Comment by Angela Eaton on February 13, 2012 at 10:14am

Thanks for your post, Brian.  My husband and daughter can't stand the light touch, but do like the bear hugs.  You just made me realize why my daughter may be asking for hugs a lot...as a way to regulate.  I hadn't thought of it that way before.  I guess I just thought she needed a lot of reassurance.

After seeing Temple Grandin, my husband thought that he would try to simulate the squeeze machine one day while my daughter was having a huge meltdown.  Problem was, he grabbed her really hard and didn't let go (thinking it may take up to 20 minutes or something).  She was totally freaked out as to why he was doing that.  So, just a warning that you may want to ask before a meltdown as to whether a child would like that, or explain beforehand what you're doing, or just don't do it so hard and long!  :)

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